ugh i feel so bad for jesy nelson and her little ones she must be going through the worst pain right now thinking about her babies having to deal with this condition i mean we can't even imagine how hard it is as parents already, adding a genetic disorder on top of that is just devastating at least she's being so open and honest about it though, raising awareness is key let's all send our love and support to her and her family
this is literally heartbreaking... i cant even imagine having to deal with this kind of news on top of everything else as a single mom... sma type 1 sounds like such a nightmare, no cure or anything... my heart goes out to jesy nelson and her girls it's so important for parents to know about sma and seek help ASAP, time really is of the essence here hopefully with all the treatments and therapies available, ocean jade and story monroe can live full lives despite this diagnosis
I'm not sure how reliable the info on this SMA diagnosis is . I mean, 60% of cases being accounted for by Type 1 is a pretty big claim. Can we get some credible sources to back this up? And what's the likelihood of her daughters actually never being able to walk? That sounds like a pretty harsh prognosis . Maybe they'll make a miracle recovery or find a treatment that works? We shouldn't be counting out hope just yet .