Jesy Nelson Reveals Heart-Wrenching Diagnosis for Twin Daughters: Rare Condition May Limit Mobility Forever
Former Little Mix star Jesy Nelson has delivered a devastating update on her twin daughters' health, revealing that they have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - a rare genetic condition that could leave them wheelchair-bound.
The 34-year-old singer and mom of eight-month-old twins Ocean Jade and Story Monroe shared a emotional video on Instagram, explaining to her fans that the girls' doctors told them they would "probably never be able to walk" due to the condition. The news has left Nelson heartbroken, with the singer breaking down in tears as she described the prospect of her daughters being disabled.
The rare genetic disorder causes certain muscles to weaken and waste away, with SMA Type 1 accounting for about 60% of cases. While there is no cure, treatments and therapies can help manage symptoms. However, Nelson's words suggest that even these measures may not be enough to prevent long-term mobility issues.
As a single mom, Nelson has already taken on an enormous burden in caring for her twins, who were born prematurely at 31 weeks after complications during pregnancy. The singer revealed that she has had to become like a nurse for the girls, putting them on breathing machines and handling numerous responsibilities that no other mother should have to endure.
In an effort to raise awareness about SMA and its symptoms, Nelson is urging parents to seek medical attention if they suspect their child may be affected. She emphasized the importance of early intervention, saying "time is of the essence" and that prompt treatment could significantly improve her daughters' quality of life.
Nelson's heartfelt video has sparked an outpouring of support from fans, including fellow singer JoJo Siwa, who commented with a message of love and prayers.
Former Little Mix star Jesy Nelson has delivered a devastating update on her twin daughters' health, revealing that they have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - a rare genetic condition that could leave them wheelchair-bound.
The 34-year-old singer and mom of eight-month-old twins Ocean Jade and Story Monroe shared a emotional video on Instagram, explaining to her fans that the girls' doctors told them they would "probably never be able to walk" due to the condition. The news has left Nelson heartbroken, with the singer breaking down in tears as she described the prospect of her daughters being disabled.
The rare genetic disorder causes certain muscles to weaken and waste away, with SMA Type 1 accounting for about 60% of cases. While there is no cure, treatments and therapies can help manage symptoms. However, Nelson's words suggest that even these measures may not be enough to prevent long-term mobility issues.
As a single mom, Nelson has already taken on an enormous burden in caring for her twins, who were born prematurely at 31 weeks after complications during pregnancy. The singer revealed that she has had to become like a nurse for the girls, putting them on breathing machines and handling numerous responsibilities that no other mother should have to endure.
In an effort to raise awareness about SMA and its symptoms, Nelson is urging parents to seek medical attention if they suspect their child may be affected. She emphasized the importance of early intervention, saying "time is of the essence" and that prompt treatment could significantly improve her daughters' quality of life.
Nelson's heartfelt video has sparked an outpouring of support from fans, including fellow singer JoJo Siwa, who commented with a message of love and prayers.
jesy nelson is such a strong single mom already caring for her babies on top of everything else. i'm sending all my love and positive vibes to ocean jade and story monroe 
i hope they get the best care possible and that time really does bring improvements for them 
Oh my goodness, this is so sad 
And now they've been diagnosed with SMA Type 1? 
That's just heartbreaking 
The fact that she has to care for them on her own already is overwhelming 
and now this diagnosis? 
It's like the universe is piling more challenges on top of each other 
But at least she's raising awareness about SMA 
and encouraging parents to seek medical attention if they suspect their child might be affected 
Early intervention can make all the difference, so let's hope for the best 
Sending all my love and positive vibes 
I'm so sad to hear about Jesy Nelson's diagnosis. SMA Type 1 is such a heartbreaking condition - it's amazing that she's being open and honest about it, though 
. Let's all send our love and positive vibes to Jesy and her girls 
, I'm literally shook by this news 
. It's so sad that she has to be their primary caregiver right now 
. As a single mom herself, she knows firsthand how hard it can be to balance parenting with other responsibilities 
.
It's heartbreaking to think about what they'll face in the future 
. The thing that gets me is how much she's already putting herself through as a single mom, taking care of those tiny humans 24/7 
! Nelson's being a total rockstar for using her platform to spread the word & support other families affected by this condition 
.
...i hope ocean jade & story monroe get the best treatment possible 
Let's all raise our voices and spread love and positivity around the world 
. I mean, I get why she's so emotional, it's just devastating to hear that her babies might have to deal with this for their whole lives 
that would be amazing right now.
.
I feel like she's already carrying the whole world on her shoulders as a single mom of two tiny humans, and now this?!