South Florida family's formula fight: A desperate father's unlikely solution.
The Cevik family has been dealing with a rare and debilitating neurological genetic disorder, Niemann-Pick disease, which affects only one in a million people. The 14-year-old son, Ali, was once a healthy boy but now requires constant care, including special formulas that cost thousands of dollars a month. His father, Muslum Cevik, is his sole caregiver and relies on the medical supplies to keep him alive.
Recently, the family faced a daunting challenge when their medical supplier refused to refund Muslum's $2,550 deposit after he paid for Ali's formula out of pocket due to an insurance reimbursement issue. The situation was made even more complicated when the supplier initially claimed they would refund the money once the insurance company paid, but only reimbursed half.
Desperate for a solution, Muslum turned to Help Me Howard with reporter Brandon Beyer. With the help of his father's efforts, Ali will now receive the formula he needs without breaking the bank. However, this ordeal highlights the importance of timely refunds from medical suppliers and the need for better communication between insurance companies, suppliers, and families.
In Florida, a new law requires that refunds be made in a timely manner. While the supplier eventually returned Muslum's money after being contacted by Help Me Howard, it's not uncommon for families to face similar challenges. As one expert noted, "Nobody can get paid more than once for their service."
The Cevik family's experience serves as a poignant reminder of the importance of access to affordable and timely medical care. For Ali, his father's unwavering dedication has been a lifesaver. The case also underscores the need for greater support systems in place for families dealing with rare genetic disorders.
With a new law now in effect, families like the Ceviks can take comfort knowing that they have recourse when it comes to medical supplier refunds. As Muslum Cevik said, "I'm extremely happy I called Help Me Howard."
The Cevik family has been dealing with a rare and debilitating neurological genetic disorder, Niemann-Pick disease, which affects only one in a million people. The 14-year-old son, Ali, was once a healthy boy but now requires constant care, including special formulas that cost thousands of dollars a month. His father, Muslum Cevik, is his sole caregiver and relies on the medical supplies to keep him alive.
Recently, the family faced a daunting challenge when their medical supplier refused to refund Muslum's $2,550 deposit after he paid for Ali's formula out of pocket due to an insurance reimbursement issue. The situation was made even more complicated when the supplier initially claimed they would refund the money once the insurance company paid, but only reimbursed half.
Desperate for a solution, Muslum turned to Help Me Howard with reporter Brandon Beyer. With the help of his father's efforts, Ali will now receive the formula he needs without breaking the bank. However, this ordeal highlights the importance of timely refunds from medical suppliers and the need for better communication between insurance companies, suppliers, and families.
In Florida, a new law requires that refunds be made in a timely manner. While the supplier eventually returned Muslum's money after being contacted by Help Me Howard, it's not uncommon for families to face similar challenges. As one expert noted, "Nobody can get paid more than once for their service."
The Cevik family's experience serves as a poignant reminder of the importance of access to affordable and timely medical care. For Ali, his father's unwavering dedication has been a lifesaver. The case also underscores the need for greater support systems in place for families dealing with rare genetic disorders.
With a new law now in effect, families like the Ceviks can take comfort knowing that they have recourse when it comes to medical supplier refunds. As Muslum Cevik said, "I'm extremely happy I called Help Me Howard."
. And now he's gotta deal with the medical supplier not refunding his $2,550 deposit? That's just not cool 
. I mean, can't you just imagine how stressed out he must be, trying to find a solution for his son's formula costs? 
. Like, what even is the point of that? It's like they're just stringing him along 
.
. That's some good karma right there 
. And I'm all for new laws being passed to ensure timely refunds from medical suppliers 
. It's not fair to families like the Ceviks who are already dealing with so much uncertainty.
. Ali's got a long road ahead of him, and his dad needs all the support he can get 
.
it's not like you're asking for the moon here, just a timely refund so your family can breathe easy again. 
now that there's a new law in place, at least families like this won't be stuck in limbo waiting for their money back. 
I feel so bad for this family 
and his dad Muslum is the only one taking care of him 
That deposit refund situation was totally unreasonable 
I mean, who wouldn't want their money back ASAP? 
but what about all those families out there who are still dealing with this kind of thing? 
We need more support systems and clear communication channels 
so no one has to go through what the Ceviks did 
It's just not right that suppliers don't offer refunds ASAP 
. This law is a huge step in the right direction tho 
but i feel for muslum and ali, its like they're living paycheck to paycheck just to keep their son alive. how many ppl would do that kinda stuff 4 their kid? anyway glad that help me howard stepped in and got the money back for them 
! The Cevik family's story is literally a heartbreaker - can't believe they had to go through all that stress over Ali's formula 
.
Can you imagine having to deal with more drama than a Kardashian family reunion? 
But seriously, the Cevik family's situation is pretty messed up. Like, who needs that kind of stress when your kid is already dealing with a rare disease? 
the fact that 1 in a million people suffer from Niemann-Pick disease is insane... like what are the chances of someone even encountering this illness? 
14-year-old Ali's stats show that his formula costs $2,550/month, which translates to ~$77,800/year. Can you imagine having to pay almost $80k a year for medical supplies just to keep your kid alive? 
muslum's deposit was $2,550... that's like paying a year's worth of rent upfront 