Former Little Mix Singer Jesy Nelson Reveals Twins' Rare Genetic Condition May Leave Them Unable to Walk
In a heart-wrenching Instagram video, former Little Mix singer Jesy Nelson has spoken out about her twin babies' rare genetic condition that may render them unable to walk. The 34-year-old star and her fiancé Zion Foster welcomed their premature twins Ocean Jade and Story Monroe Nelson-Foster in May after a gruelling hospital appointment marathon. The diagnosis of spinal muscular atrophy type 1 (SMA1) has left Nelson devastated, but she's determined to raise awareness about the condition and its warning signs.
According to Nelson, her twin girls will "fight all the odds" despite being told they may never walk or regain neck strength due to SMA1. The singer said that with treatment, their quality of life could be improved, emphasizing the importance of early detection and prompt medical intervention. SMA1 is a genetic neuromuscular disorder causing muscle weakness, progressive loss of movement, and paralysis.
Nelson urged parents to be vigilant for signs such as floppiness, inability to hold themselves up without support, and rapid breathing in the tummy. She stressed that time is crucial in treating SMA1, saying "your child will need treatment. And the quicker you get this, the better their life will be." The NHS notes that about 70 children are born with SMA each year in the UK, but fewer than one in ten (8%) survive to the age of two without treatment.
Despite the challenges ahead, Nelson remains optimistic, saying her girls will "fight all the odds" and make the most of their lives. Her own pregnancy was marred by complications, including twin-to-twin transfusion syndrome (TTTS), which forced her into an emergency procedure and 10 weeks in hospital before birth at 31 weeks.
In a heart-wrenching Instagram video, former Little Mix singer Jesy Nelson has spoken out about her twin babies' rare genetic condition that may render them unable to walk. The 34-year-old star and her fiancé Zion Foster welcomed their premature twins Ocean Jade and Story Monroe Nelson-Foster in May after a gruelling hospital appointment marathon. The diagnosis of spinal muscular atrophy type 1 (SMA1) has left Nelson devastated, but she's determined to raise awareness about the condition and its warning signs.
According to Nelson, her twin girls will "fight all the odds" despite being told they may never walk or regain neck strength due to SMA1. The singer said that with treatment, their quality of life could be improved, emphasizing the importance of early detection and prompt medical intervention. SMA1 is a genetic neuromuscular disorder causing muscle weakness, progressive loss of movement, and paralysis.
Nelson urged parents to be vigilant for signs such as floppiness, inability to hold themselves up without support, and rapid breathing in the tummy. She stressed that time is crucial in treating SMA1, saying "your child will need treatment. And the quicker you get this, the better their life will be." The NHS notes that about 70 children are born with SMA each year in the UK, but fewer than one in ten (8%) survive to the age of two without treatment.
Despite the challenges ahead, Nelson remains optimistic, saying her girls will "fight all the odds" and make the most of their lives. Her own pregnancy was marred by complications, including twin-to-twin transfusion syndrome (TTTS), which forced her into an emergency procedure and 10 weeks in hospital before birth at 31 weeks.
Just saw this & my heart broke for Jesy Nelson 
She's going through so much with her twins' diagnosis, but she's determined to raise awareness about SMA1 
It's heartbreaking that some kids don't get the treatment they need in time 
The NHS stats are crazy – 70 kids born with it each year & only 8% survive to 2 without treatment 
Jesy's optimism is inspiring though, and I'm sending all my love to her & her girls 
People with good hearts see good in every child 
️! She's being so brave about sharing this with us all, you know? I mean, can you even imagine having to go through that kind of diagnosis and still trying to raise awareness about it 
. But, like, Jesy's super positive, right? She's gonna fight for those twins and make sure they live their best lives 
! And can we talk about how amazing she is for sharing all this info with us? I mean, now we know how to spot the signs 
. I'm literally sending all my love and positive vibes to Jesy and her twins 
. A spinal muscular atrophy type 1 diagnosis is super tough, but Jesy's right to be vocal about it - more awareness can only help. I mean, floppiness and rapid breathing in the tummy? That's gotta be checked out ASAP. The NHS stats on SMA are pretty sobering too - fewer than one in ten kids even make it to two without treatment. But you know what? With early detection and the right meds, some of these kiddos can make a difference. I'm sending all my positive vibes to Ocean Jade and Story Monroe 
. Fingers crossed they get the best care possible and live full lives despite their diagnosis.
, i cant even imagine going through something like that with my own twins... Jesy Nelson's strength to share her story & raise awareness about SMA1 is truly inspiring 
. early detection & prompt medical intervention can literally make all the difference in their quality of life 
and hope that her twin girls will definetly find ways to overcome this condition 
But I love how she's using her platform to raise awareness about SMA1 - it's so important for parents to know the signs so they can get treatment ASAP 
My heart goes out to her and Zion, they're in this together, and it's clear they're going to do whatever it takes to give their girls the best life possible 
Jesy Nelson's story is so heartbreaking she's fighting for her twins' lives with SMA1 and it's just... *sobs* 
. I mean, the stats on SMA1 are already so alarming... 70 kids born each year in the UK with only 8% making it to 2 without treatment 
. But Jesy's right, early detection and prompt medical intervention can make all the difference 
. And it's not just about saving their physical lives, but also their quality of life too 
i mean 70 kids born with it in the UK each year is already heartbreaking, but less than 10% survive to age 2 without treatment?! that's just crazy 
and now she's gotta spread awareness & hope for a better life... i love her strength, tho 
She's right, her girls will "fight all the odds" and make the most of their lives! We should all be sending them all our love and support 
... did you know that SMA1 affects 1 in every 50,000 births? 
According to the NHS, 70 kids are born with SMA each year in the UK, but only 8% survive without treatment 
... I'm sending all my love & positive vibes to Ocean Jade and Story Monroe 
